Sarcoidosis
of

 Long Island

Who We Are

 Sarcoidosis of Long Island is a
charitable organization to provide emotional,and help find medical
assistance for those living with Sarcoidosis.
Sarcoidosis of Long Island has grown into an advocating organization to
fight for the rights of people who have this rare disease called
Sarcoidosis. We fight for those who can't fight for themselves. We work
with local, county, state and national government officials to gain
recognition and raise awareness for this rare terrible disease.
We support Sarcoidosis patients with a support group.
Partnering with other
organizations to help find a cure.
Board Members
Frank Rivera- President
Cathleen Terrano- Vice President & Treasurer
Pamela Beller Capotosto- Secretary
WHAT IS SARCOIDOSIS?
Sarcoidosis (pronounced SAR-COY-DOE-SIS) is an inflammatory disease characterized by the formation of granulomas, tiny clumps of inflammatory cells, in one or more organs of the body. When the immune system goes into overdrive and too many of these clumps form, they can interfere with an organ’s structure and function. When left unchecked, chronic inflammation can lead to fibrosis, which is permanent thickening or scarring of organ tissue.
This disorder can affect almost any organ in the body, including the heart, skin, liver, kidneys, brain, sinuses, eyes, muscles, bones, and other areas. Sarcoidosis most commonly targets the lungs and the lymph nodes, which are an important part of the immune system. When it affects the lungs, it is called pulmonary sarcoidosis. Ninety percent or more of people diagnosed with the disease have lung involvement.

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GALLERY
FRANK RIVERA'S INTERVIEW
WITH
NBC NIGHTLY NEWS 
ABOUT
RIGHT TO TRY

MAY 27, 2018