Sarcoidosis
of

 Long Island



Sarcoidosis Awareness Month Support Group Meetings!

Please anyone who has Sarcoidosis or is a Caregiver or wants to know about Sarcoidosis in the New York area please come down for our Sarcoidosis of Long Island Support Group Meetings for 2018:

Sunday, January 20, 2019
6:00 PM - 8:00 PM Sarcoidosis Support Group (Approved) JTM Conf Rm 5

Sunday, April 21, 2019
6:00 PM - 8:00 PM Sarcoidosis Support Group (Approved) JTM Conf Rm 5

Sunday, July 21, 2019
6:00 PM - 8:00 PM Sarcoidosis Support Group (Approved) JTM Conf Rm 5

Sunday, October 20, 2019
6:00 PM - 8:00 PM Sarcoidosis Support Group (Approved) JTM Conf Rm 5

at Mather Hospital

75 N Country Rd, Port Jefferson, NY 11777


Conference room #5 from 6pm-8pm.

Please come down and be heard and learn!! 




Great News!!


I just received a tremendous honor in the December 28, 2017! I was named in a local newspaper The Village Beacon Record News. People of the Year! I am totally honored and totally surprised!! I want to thank Sarah Anker, Valerie M.Cartright, Jane Brittingham Bonner Sandusky, William Doc Spencer, Leslie Kennedy, KevinLaValle, Kara Hahn and all of The Town of Brookhaven and Suffolk County Legislators for their support! I want to thank CathleenTerrano, Pamela Beller Capotosto for your amazing help and support! I want to give a personal thank you to Foundation for Sarcoidosis Research Ginger Spitzer and Kelli Elaine for all of your support and help! Thank you to Carolyn HornDumond, and everyone else, too many to name! As many of you know I don't do this for personal accolades, but am so happy I can help all of those who have Sarcoidosis and any other Rare diseases! I truly am in tears with seeing this! I love you all!!
I just looked online and saw I am in 5 of these newspapers! 
The Village Times Herald
The Port Times Record
The Village Beacon Record
The Times of Middle Country
The Times of Smithtown
http://tbrnewsmedia.com/epaper/


News Articles About Sarcoidosis and Sarcoidosis of Long Island!

I am so grateful that my work is being recognized by so many so that Sarcoidosis and the Rare Disease community gets the recognition it deserves.

https://sarcoidosisnews.com/2018/01/02/n-y-sarcoidosis-activist-plans-nonprofit-fund-mental-health-counseling-rare-disease-patients/

https://globalgenes.org/raredaily/rare-leader-frank-rivera-ceo-of-sarcoidosis-of-long-island/

https://globalgenes.org/raredaily/frank-rivera-sarcoidosis-advocate-shares-cautionary-tale-on-the-value-of-awareness/

https://www.thriveglobal.com/stories/25259-my-life-as-a-rare-disease-patient